Mogellons Stories

This is to Karon Schwab. I know exactly what you are talking about- my best friends became the country music station DJ's and talk radio. I, too, lost everybody including a child to this disease. The only person in the world, that would have stood beside me, the love of my life, my Dad died just right before I started getting really sick. My world has become a prison of lonlieness- life is a super lonly place to be when everybody thiks you are crazy- and instead of standing by you or hearing you or listening to you or being the shoulder you never imagined they would need, that they should be, they abandon you, and when you need them the most, and in lots of cases work against you, like talking to your doctor, convincing the you are on drugs- because of the change in you. This is not your fault! You are beautiful! I look at people who have left me and or judged me and think 'You just don't know till you walk in someone else's shoes' and I will never judge anyone, or be quick to dismiss anyone, or ever assume that because I cannot make sense of something doesn't mean that it isn't real, or that someone is crazy. I know I have a stronger soul, and a way bigger heart because of this cruel world that doesn't understand yet. It sounds like you are too! you are beautiful and strong! I saw that you mentioned praying to heaven to get better.. I will pray for you, and please remember God never gives you more than you can handle. So, if you are given such a heavy load, you must be pretty strong girl! My heart goes out to you, being a sufferer myself your story hit very close to home. My article is right before yours, my name is Andy. You didn't leave your email address so I couldn't contact you, but would love for you to contact me. Curemorgellons@yahoo.com. You don't have to fight alone anymore, you have all of us, and all of us care more than you know. Together we can make some noise and make a difference, be healed and reclaim our lives! God bless you- you are in my prayers

9/21/6

HELLO MY NAME IS KARON SCHWAB AND I SUFFER FROM MORGELLONS IT WILL BE A YEAR NOVEMBER 12TH.MY LIFE HAS NOT BEEN THE SAME EVER SINCE IT HAS COST ME MY MARRAIGE OF 12 YRS.NOT ONLY HAVE I LOST MY HUSBAND I LOST MY BEST FRIEND MY CONFIDANT MY LOVER MY BROTHER MY DADDY MY ALL!HE WORE ALL THOSE HATS VERY WELL AND I MISS HIM VERY MUCH!!HE TREATS ME LIKE ASTRANGER AND A ENEMY I KNOW HIS LASHING OUT AT ME IS HIS GUILT FROM HIS BEHAVOIR TOWARDS ME ,AND IT BREAKS MY HEART. I SLEEP ALONE EAT ALONE SPEND MOST NIGHTS ALONE!!MANY TEARS HAVE BEEN SHED .THE LOSS OF MY MOTHER RECENTLY AND SOON AFTER MY FATHER THEN BROTHER AND MY BOSS WHOM ALSO WAS A LONG TIME FAMILY FRIEND AND THEN OF COURSE MY JOB WHICH I LOVED DEARLY!!SOOO MANY LOSSES SO CLOSE AND TO LEARN TO LIVE WITH MORGELLONS TRYING TO LICK MY WOUNDS TO HEAL SUDDENLY ANOTHER WOULD OPEN AND SOON ALL BECAME TOO MANY TO HEAL JUST LIKE THE LESIONS ON MY FACE SO MANY AND SO MUCH PAIN AND NO RELIEF INSIGHT , IM ONLY ONE PERSON PLEASE GOD HELP ME AS I STARE IN THE MIRROR  AT THE OPEN CRUSTED LESIONS ALL OVER MY FACE THE AUDITION I HAD FOR A MAGAZINE I HAD TO CANCELL!!!THE ONLY AUDITIONS ID BE GOING TO WOULD BE FOR HORROR MOVIES MY FACE NO NOT MY FACE I CRIED OUT LOUD FOR GODS SAKE HAVENT I PAID MY DUES YET IN LIFE IVE LOST EVERYTHING BUT THE ONE THING I THOUGHT I COULD KEEP FOR A WHILE WAS MY LOOKS I STILL HAD MY LOOKS MY PLASTIC SURGEON TOLD ME FOR MY AGE I HAD THE MOST TIGHTEST THICK RUBBERY YOUTHFUL SKIN HE HAS EVER SEEN IN FACT WHEN I HAD BREAST IMPLANTS HE COULD NOT GIVE ME THE SIZE PLANNED DUE TO THE TIGHTNESS OF MY SKIN HE RECOMMENDED THAT TO ACHIEVE MY SIZE TO DO THEM IN INTERVERTS AND BELIEVE IT OR NOT THAT WAS ONLY A D CUP GREAT SKIN BUT NOT FOR PLASTIC SURGERY!MEANWHILE MY FACE SOON BECAME A BREEDING GROUND FOR MORGELLONS AND WHEN I FELT SAD A GAME TO PASS TIME ALONG WE ALL KNOW AS DOT TO DOT!!ALIENATING MYSELF FROM FRIENDS AND LIFE A.M.TALK RADIO BECAME MY FRIEND AND I BECAME BOBS ENEMY STRUGGLING TO CONVINCE BOB THAT THESE FIBERS AND GLASS LIKE ROCKS COMING FROM AND OUT OF MY BODYAND JELLYFISH MOP HEADED WELTS UNDER MY SKIN THAT APPEARED TO BE SWIMMING JUST UNDER MY SKIN WAS NOT A RESULT OF FALSELY ACCUSSED OF DRUGGED INDUCED D.O.P.AND NEEDLESS TO SAY MY SPOUSE ANNOUNCING TO ALL THAT THIS WAS MY PROBLEM AND NOT TO MENTION THE FACT HE WENT DIRECTLY TO MY FAMILY DOCTOR I HAD SINCE I WAS 20 I WAS LABLED AS D.O.P. SMOTHERED IN SORTS OF DRUGS BOB WAS SO DAMNN SURE THAT THIS WAS THE PROBLEM I JUST WANTED TO GIVE UP THE DEPRESSION AT ITS PEAK THE LOOKS THE STARES THE MOCKING  THE PAIN OF IT ALL THEN  WITH THE......        ..............................................................................TO BE CONT....IF SELECTED THANK YOU KARON SCHWAB
PH.951 837 8955.................

9/15/6

I do not know how long I have had Morgellon's. I first started getting
the
lesions with the fibers a couple of years back. I went to the hospital,
and
in my case the doctors could see the fibers, all over me, in my skin,
in my
lesions, everywhere. It glowed in the dark, made me itch terribly and
was
accompanied with Chronic Fatigue sleeping of upwards of 3 days, not
knowing
if it was 6am or pm when I would wake up, or what day of the week it
was. As
well as the fatigue, which to me has been the most disableing, I have
narcolepsy, loss of motor skills, cognitive function, sudden speach
impediment, slurring, visual disturbances, bright spots, numbness,
paralisys, seizures, pretty much all your auto immune disease or
central
nervous system disease symptoms. Most recently, I have tremors in my
voice,
tremors in my hands and head, losing ability to use fingers beginnig
with my
ring fingers 4th fingers, speach, tongue, swallowing, chronic pain,
heart
palpitations, chest pain, shallow breathing or difficulty breathing.
When I
get the skin rash really bad, it is if as though my chest fills up with
air.
I am 28 years old. This has been devastating to my life. I have a 5
year old
son who was taken from me because I am sick, although they would argue
crazy. I stopped going to the doctor because everytime I did they would
laugh in my face, and I was fearful of what might be documented inmy
medical
file that might be used against me later in my custody battle. I have
been
searching for answers ever since. Trying to cure myself. I searched
everywhere, but never found anything. My search brought me to the CDC
where
I read about disease after disease not to find a thing. Below is one of
my
letters to the CDC and the response I received back in July 2005. I'll
admitt, my letter is poorly written, I was very sick and frantically
desperate. At the time I believed that Morgellons or as I called it at
the
time, Blackhair like worms, were a waterbourne paracite or bacteria. I
believed this because after I drank tap water, I would get sick. I
would see
the black hair fibers right away from the corners of my mouth up my
cheeks,
as well as get the black sweats. I would get the same symptoms I listed
above and I could also see it in my then 4 year old son. I would take
sulfabactrim and would get really sick but it seemed to help, not all
the
way, but some. When I would drink the water again, I would get sick
again. I
now only drink purified bottled water and only certain brands. I am not
Morgellons free but I think it helps. I would like to add that I am in
the
Seattle area looking for Morgellons sufferes to start a support group
or if
any of you know of a Doctor in the Seattle area willing to treat
Morgellons.
I am desperately seeking help and or support of some kind. Finding out
recently about Morgellons has been bittersweet. I have been searching
for
others like me, and sadly I have found all of you. I love you and pray
for
you all. My email is Curemorgellons@yahoo.com, I go by Andy, I am a 28
year
old mother of 1. Below is my letter to the CDC and their response back
before Morgellons got any noteriety.

God Bless You All,



Andy

>From: "CDC Public Inquiry" <inquiry@cdc.gov>
>To: >
>Subject: cpFW: water testing for parasites
>Date: Mon, 11 Jul 2005 16:25:06 -0400
>
>Thank you for your interest in CDC. CDC is not a regulatory facility.
>You would need to contact the Washington State Health Department for
>assistance at 360-236-4030.
>
>
>
>
>
>
>
>Thanks,
>
>
>
>Public Inquiry
>
>CP
>
>-----Original Message-----
>From: CDC Public Inquiry
>Sent: Monday, July 11, 2005 2:52 PM
>To: CDC Public Inquiry
>Subject: Public Inquiry for Unknown topic
>
>
>
>A new public inquiry has been received from the CDC Internet for the
>above referenced subject.
>
>The following is the information as entered by the user:
>
>Field Name
>
>Data provided
>
>Date / Time posted:
>
>7/11/2005 2:51:42 PM
>User Name:
>
>Angela
>
>Comments:
>
>I have this in my eye.. this is what I have... I need some help in
self
>treating due to circumstances beyond my control.. had also an ulcer in
>my eye but have no contacts etc.. my main reason for clicking here is
to
>ask do u have an email address for the cdc? I believe the water has
been
>infected w a parasite black almost microscopic hair looking- worm-
grows
>from mouth through head and body- downtown everett WA causing neuro
>probs- I've seen w me and many othes- went o hosp and many presented
>same symptoms- all kinds of auto immune plus painful urination- no
stds-
>no infection in bladder- can't find anything wrong- sent home w flu-
>lymphpodemapathy- asphysciation SP? audible visual impairment
>hallucinations- loss of motor skills.. I have seen this in my 4 year
>old.. for him he gets limpy on one side and is wobbely almost falls
>over.. I started treating w metronyazacol from a few years ago... but
I
>am in an international type custody battle if u will.. have had lots
of
>mis diagnosed health problems due to what I believe to be poisioning-
I
>have in the past suffered various neuro symptoms and thsi has severely
>along w other things hurt my custody battle.. He is w my ex right now-
>and nobody takes me seriosly about what to look for what to present to
>the dr for symptoms etc. and that he is not being cured and they ae
>still giving him the water. I'm pretty sure that this is caused by the
>water- how do I go about getting the water tested for a parasite so I
>can be taken seriosly or rule this out. I am sure its the water bec
>certain areas of town- everyone is geting these black lines in face
from
>corners of mouth and into eyes,and have anal genital audio audibl e
and
>visual and neuro probs..
 

9/11/6

To the Few of You l have left;
ln Saturday's Tacoma News Tribune, 9-2-06, pg D6, there is a article on
Senate Bill to allow attornies to help Veterans get their benefits.
After learning and being one of very few to have Morgellons put unto
military medical records (as a possibility due to Ctr for Disease
Control - CDC) that l may have had this since l was discharged from the
service in l968.
All the classic symptoms, mentally and physically, l can overlay on my
medical records.
l've lost family, friends, good people because of what this disease
causes and is joked about even by Pierce Cty Disease Control and other
agencies while there are "blips" on tv when a Morgellons patient
commits
suicide.
The article by Tom Philpott of www.militaryupdate.com or Military
Update, POB 23llll, Centreville, VA  20l20-llll is important as too
many
vets have been denied too often because of diagnosis which keeps us
from
receivng benefits. This maybe a attornies dream but l'd say, give it
all
to them if they can break the MONEYgrip that the government keeps from
the many who deserve and like myself and MANY SHRINKS, says my problems
started during Viet Nam era and Morgellons is the outcome.
For once - NO ATTY Jokes

thanks,
James C. Johnston
253 445 0490

Please note, again, that info on Morgellons at this point should be
sent
to US Senator Maria Cantwell in Washington D.C. or Washington state,
especially with current election. Feel all elections in the future
should be part of the platform for many as l am finding many soldiers
at
the VA Hospitals, dermatology, who are being told many things but when
Morgellons is discussed, many feel better as at least they know and
like
myself, have something to grab unto besides a delusion.
best,
Jim Johnston
253 445 0490

Contact lssac in Seattle at Sen Cantwell's ofc. lt would be nice to use
this, and l am in trying to get VA benefits due to problems with this
that is still IFFY.

Hi.  I am very thankful for your reply.  I have reached out to some of
the
nurses you referred and await their response.

Yes I would very much like to speak w/you too.  the more the merrier. 
I am
not ashamed of my problem, at first yes, but now...i will not be shy or
silent.  I have (we who have it) are not looney, delusional, touched
upstairs, burnt, pick aholocs or self mutulating wackos, drunk, high,
upper
class, lower class, middle class and on and on.  however, i do believe
(or
at least could be something to add to the process of elimination or to
the
possible common denominator) that we all have come into contact with. 
Either chemical, mineral, biolocigal, environment, social, biological,
etc. 
Exactly what our own, the many, scientists, medical, mental, etc. are
trying
to figure out of course, but just needed to say and vicariously
seek,(and
will help if I can via survey, personal contact every known sufferer,
on
line, phone,letter, email with a collectiely devised whatever, list of
crossreferences, like.  Windex, medication, beer, soap, vacation site,
medication, exact brand clothes, q-tips,, over and over, one after
another,etc. YOU KNOW - and I am very willing to help, volunteer,
travel,
meet, support group/help, etc., as much as realistically possible.

Sorry, I get a little (actually a lot) carried away.  I can't help it,
Being
(forgive me) caught in this horrible and seemingly unescapable web of
horror
and slowing being cocooned for its (Morgellon) consumption is very
scary and
I will not surrender.

But first things first, We need to connect and talk.  Call me,
908-705-3843
and keep calling or leave detailed message until we connect.  I will be
waiting with inmeasurable anticipation.  Thank-you.
 

Dear Mike:

Please post this on your web site for other Morg Monster suffers,
thanks.

To whom it may concern.

I also have Morgellons.  For approx. 2 years now I have been on this
twilight zone roller coaster ride.  It wasn’t until recently that I
finally
found out just what it was I had, until I came across Mike’s web page
(and
the Fox 5 segment on TV).  My thanks to the internet, Mike, and
countless
and nameless others who care and are collaborating to bring this
nightmare,
black hole and frightening disease to the surface of what seems like an
abyss.

Simply, from what I have read from other suffers, and with my own eyes,
how
the symptoms and experiences were identical to my own.  Dajavu?  I
think
not, this is the real deal.  Wow, I’m not alone, whew-eee.  One thing
for
sure we all suffer the same thing which is creepy, bizarre and ugly to
say
the least.  The intensity and anguish that this disease causes is
beyond
words.

I would like to speak with others who wish compare notes of its
evolution so
to find a sense of normalacy.  My e-mail is jkanach@hotmail.com re: 
Morg
Monsters.

At this point my motto is:  (forgive me)

I strive to conquer and lick this thing and win, even if over my dead
body. 
I will not let them win, to invade and feast on my flesh, and as such
can
take it from them.  But will I win, either way?

 

8/17/6

just WANT TO AD MY NAME TO THE LIST:  I've BEEN DEALING WITH THIS PROBLEM (OF WHAT I FEEL IS MOREGLLONS) FOR APPROX. 14 YEARS.  I DON'T HAVE THE WORST INFLICTION ( BUGS CRAWLING ABOUT OR INSIDE THE SKIN) AS OTHERS BUT HAVE DEALT WITH ALL OTHERS INCLUDING THE LESIONS, FATIGUE, JOINT PAIN, BRAIN FOG ETC. AS THE OTHERS.  I TRULY FEEL BLESSED THAT I DON'T HAVE THE "CRAWLIES" BUT CONTINUOUSLY PRAY FOR THOSE THAT DO AND PRAY FOR THEIR HEALING THROUGH GOD'S GREAT HEALING.  I FEEL THAT WE SHALL, THROUGH THE PRAGMATISMS, THE DOUBTERS AND OVERALL "DOUBTING THOMAS'S" OF THIS WORLD, OVERCOME TO ALLOW THE WORLD TO KNOW THIS AS A TRUE 'LIFE TAKER'. THOSE OF US WHO ARE INDEED AFFLICTED WILL SAY, WE WISH THIS NOT ON OUR WORSE ENEMY. WE PRAY TOGETHER EACH DAY, ALTHOUGH INDIVIDUALLY, THAT THIS CRUELTY BE CURED.  THERE ARE MANY OF GOD'S CHILDREN WHO ARE AFFLICTED WITH THIS THAT ARE WILLING TO GO FORTH ND SHARE IT'S CURE.  WE ARE WAITING, LORD.  PLEASE HEAR OUR PRAYER. 

8/13/6

8/11/6

About five years ago there was a news magazine on television that had a story about a woman afflicted with fibers that exited skin lesions. She had visited one doctor that noticed that she carried around a certain french bottled water.The doctor asked how often she drank the bottled water. Her response was that she drank it all the time and carried with her that particular type of bottled water all the time. The doctor determined that the french bottled water contained a strange kind of bacteria or fungus that was the cause of the woman's illness and fibers. She stopped drinking that type of water and I am not sure what kind of treatment she was placed on, but she has since recovered from her affliction.

It seems that morgellons is caused by a water borne bacteria or fungus.
It is critical to find a safe sources of drinking water to maintain good health.

Hopefully this information may help people with morgellons.
 

My son James was diagonised with end-stage-renal-disease in 2001--at
the
same time he was experiencing
sensations of bugs crawling under his skin...we told his
nephrologist, his regular doctor and dermotologyst about
this and they said he was delusional.....we took samples
to every doctor he saw and they all said the same thing..
it was all in his head.....
in 2004 he was diagonised with endocordytis and
peripheral neuropathy..we changed bed clothes every time he got up, we
threw
out furniture that could possibly
harbor anything, he used peroxide in his bath to ease the
itching, we used untold brands of anti-itch ceams and
he would actually sit with a pin knife and dig the hard,round things
out of
his skin...there were white, black
and red fibers that would suddenly come through his skin.....the
doctors
told him this was phosperous (sp)coming to the surface due to the renal
failure....He was
treated like dirt and on two or more trips to the ER, they
treated him like a meth addict...they drew blood and instead of
checking the
kreating, bun, etc, they tested him
for meth and other drugs.....He was in torment for almost
5 years.....sadly, Jim passed away on 24 May 06 with the
knowledge that he was not alone in the grip of this horrible
condition......I am mailing 2 articles that were run
just this past week to all the doctors he saw.....sadly, Jim
had more respect for the doctor's than they had for him as a
person.......Hopefully, there will be sufficient evidence for the CDC
to
begin an agressive study of this disease and there can be relief for
those
who suffer with it.......
Jim had lived in Mt Pleasant TX for about 7 yrs until he
came back to TN in 2000 a very sick young man
 

8/3/6

8/1/6

Been passing out websites but suggest much concentration go to current
Veterans as they are in the newsfront now days and a chance for us
furthering efforts to get the name of Morgellons' to the public.
l have seen many vets at Seattle and Tacoma who for the first time are
understanding, as their doctors are, what Morgellons has and is doing
even without the sores. MANY are coming after 2nd tour of duty in lraq
and again, a chance to spread the name.
Have found "bathing in peroxide" effective for some but there has to be
several strains of bacteria/virus/stress in one ball as ointments and
salve's will help, than not. Hate living on Ammonium Lactate but
haven't
had major lessions but now have small bitetype sores. Ganoderma Lucidum
or mushroom paste from this plant has also helped but feel FOOD or
liquid in certain forms like 'gluten" may cause some.
Feel the variety is what is causing doctors to be in "delusions" except
when cornered with the old question: How can you see my dellusion??"
Most docs don't answer.
best,

email always welcomed as l am now, thanks to lady l will not name at
this time due to her job, but have medical records in the Military
Medical System regarding Morgellons' and which was denied for all until
now, however, still trying to find ONE veteran who has had this entered
into medical files.
 

Thanks to those of you who helped get Morgellons on KING 5 TV and
thanks
to King 5 for being the first as we have been trying for months to get
local Washington state media to produce but like the Military and CDC,
they don't want the public to know.
There is NOW a challenge to the rest of the media to help those in lraq
coming back to understand what well happen to them as this is a mental
disease stressing to a mental disease and thus force NATIONAL ATTENTION
as has CNN, Art Bell, San Antonio and so many more that perhaps now,
many suicides will be explained.
 

7/29/6

7/21/6

I have Morgellons.  My traditional medical doctor believes fibers are growing in my skin, which are red, blue, black, and clear in color. He has removed them from my skin, including just yesterday, for samples for the transmission electron microscope, the scanning electron microscope, and mass spectrometer.  I will go to the testing to be available to fresh samples, and because i am dyng to figure this out.  He can see skin over the fibers (with an handheld microscope).  He has been treating me for 5 months and I am 90% better.  He treated me for the fibers with antibiotics (Doxycycline).  I stopped after 2 months and the fibers came back all over.  I went back on the antibiotics and now I hardly have any again. The ones I do have are thinner and shorter, but still many emerge tangled and twisted.  

My doctor was a family physician for 20 years before specializing in psychiatry.  My primary care physician refused to examine me, because she thought I was imagining stuff coming out of my skin, and she wanted to avoid giving my condition any medical legitimacy.  I told her I thought it was fiberglass.  She referred me to the psychiatrist because she thought it was in my head.  The psychiatrist suspected the same thing.  Then he looked at every single one of my lesions and told me he could see a black dot and/or fibers embedded in every single one of my lesions.   He told me it was not in my head, it was in my skin.  He has spent hours and hours examining me and sending me for gazillions of tests.  I tested negative for Lyme antibodies. I have slightly elevated levels of TNFa.

7/29/6

7/7/6

7/4/6

Perhaps It is because so many doctors I went to looked at me as though I were insane that I eventually just took their almost useless advise and suffered mostly in silence for the last almost 2 years.  It was not until Yesterday that a chance small story I read led me to realize that others were and do have something VERY ODD going on and we all share the same symptoms. Thank God for the internet!!!

 

My story is like so many I have read over the last 24 hours and I can only say that since I had no other people who had knowledge enough to be very compassionate I became forced (like so many) to "shut up" and play scientist secretly.

 

It all began when I was in the shower and my buttocks began feeling very odd.. like something(s) was/were moving inside and I was shocked when I reached back to feel dozens of rather odd bumps.  Each bump seemed to have a small hard cap extruding and unable to see clearly I tried plucking one out.  What I saw was a hard black thing that at the time I thought perhaps had occurred due to sitting on something that gave me splinters.

 

Figuring I could just remove them (as one would splinters) I began pulling each out one by one... some seemed to be very deep and although I noticed a rather large blood flow from each it actually seemed like it was a relief to remove them.. some seemed black..some red and the deeper ones were attached to some kind of clear material I had never seen before come out of my body.

 

Even though I knew I was causing damage I did not care because the removal of each one caused the sensation of "movement" within to lessen. It actually seemed it should have been far more painful than it was. I also thought it was odd that after a moment of huge blood flow the "wound" seemed to seal up far quicker than one would expect.

 

It was a bit hard to sit for a few days but then I began having a "tickling sensation" on yet another part of my body... this time my left leg. I have since experianced a "breakout over my entire body.

 

This time I could see what appeared as small raised bumps... appearing in what seemed as groups of three.  I watched these progress and grow in only 12 hours and finally they seemed to open on their own and again there was these odd black and red hard things that on close examination looked like red and white fibers and surrounding hard "seeds".

 

I removed what I could but the wounds seemed unusually deep and having suffered "acne" in my earlier years I could tell that this was NOT a typical skin problem.  Still, I simply kept watching and assumed it was an allergic reaction or something else.  I noticed that sometimes when I removed them a pain would shoot up my entire leg and again this odd heavy blood flow, deep wound and rather sudden stoppage of flow.  The wounds even healed oddly... forming a black easily removable "scab?" and eventually forming a ball of some kind of clear "puss?".  Then they would leave a deep cavern and long lasting (slowly healing) scar.

 

Trying to keep the wounds from further infection I attempted pouring "Hydrogen Peroxide" on them and the feeling was nothing like a "typical" wound.  It felt like thousands of little worms were going hyperactive within me and frankly that led to my first call to a doctor.

 

Thinking I could help identify the problem I brought in some samples I had collected (BIG MISTAKE) and was shocked to be treated like I was "crazy".  They sent my samples in for rather expensive testing and the result was that they claimed I was "delusional"... HUH, Wait a sec... I never experienced ANYTHING like this before in all my 43 (now 45) years and these sores were NOT self inflicted... perhaps exasperated by my removing the crap from them... but I HAD NOT begun them and certainly they were "untypical".

 

I stayed strong for quite a while, yet the problem continued to spread rapidly and I was forced to seek out pain killers just to sleep.  I started awakening often with crawly feelings and odd muscular pains and twinges.  In the morning my bed would be covered in small black & red  "pellets" that looked like small rodent droppings and fuzz balls and I began collecting and counting them.  Again they did look to me like explained earlier and since I would take the time to clear what was there the fact that they appeared again after I had awoken seemed unexplainable.

 

I was shuffled from doctor to doctor adding up huge medical bills yet all would look at me like I was "crazy".  All tests showed that it was "nothing".. well, they did find secondary infections, some odd blood thing (which eventually they found was HEP C) and also noted a high level of "Yeast" (huh?) in my blood stream... Otherwise they merely said take this or that and none of these expensive meds seemed to have lasting effect.  After my perscription would end they would soon return again.

 

If I wasn't crazy when I started I certainly was being driven crazy by all this and the embarrassment of the obvious sores has kept me from going swimming, wearing shorts or short sleeved shirts... I looked like a junkie who couldn't find a vain and poked needles wherever... The worst of it has been over for several months but still I occasionally get new small sores and oh yes, another thing I noticed was that wherever there was a larger sore (which often shaped into a "guitar pick" like shape) there would appear a smaller dot-like round "prick" within 1/4 inch of the main wound.  I began calling them "picks & pricks".

 

Now here is where things become a bit surreal and I have yet to hear a story that includes anything like I am about to tell you.  I pray you will open your mind to what I am saying because frankly it is so odd that had I not personally experienced it even I would think I was nuts.

 

First each "breakout" had a pattern. 1) Itching sensations, 2) Bumps, 3) "pelleting", 4) patterning "Picks and pricks" and then something I will call "Roaming, possessing and movement (RPM) which eventually led to my actually naming these "seeming life forms" as "FIBRITES" (hey, they needed a name at this point (LOL).

 

After a major "attack" I would notice that these "fiberites" would actually slowly "uncoil" and begin "roaming" and entering anything that contained "fiber"... Clothing, hair, cloth, whatever they could "enter".  I am not kidding... it was like the "twilight zone" and often I could sit and watch this happen.  It was as though they were thin mindless snakes that I later I found seemed drawn to light and heat... In fact they were so bound into my head hair that if I turned on the heat lamp in my bathroom I could watch my hair actually rise (feel it too) toward the light... I tested this over several months and have never reported it because I was already deemed crazy and this seemed nuts even to me. Thread, hair and feathers seemed the most easily moved though usually the movement takes a longer period than most people have the attention span to perceive clearly to give it full notice.  I was facsinated... perhaps a bit "obsessed" but I had never had anything like this happen and I had to try and figure it all out.

 

The "life span" seemed to have a two week period and the movements would begin very slight but eventually crescendo and then fall and stop completely.  I have considered that perhaps it was a "mental" effect perhaps caused by the "disease" and since I have no proof (though I tried) I might have written it off except that to this very day I find odd hard black long hair like fibers in boxes that are consistent with what I saw and which have no reason for being in the things they are often twisted around (some things are even held-together as though a spool of thread was allowed to go unchecked and got knotted around stuff... yet none of the boxes should even have thread anywhere near of in them... nor is this thread... its more like long black hair but no one here has long black hair and it's EVERWHERE).

 

I also noticed several other oddities which I will list here at random:

 

1) Often during a heavy period a "something" which always looked the same would form in my nose. It was somewhat "shrimp like" and had two round eye-like structures (on only one side) and what I would compare to a "mosquito" like "beak"... To what I would call its "butt" seemed to be a membrane filled with clear fluid.  The main body was a "golden brown" color.  These would move for a short period once removed (sort of like lifting its "head?") but would "die" rapidly as they dried.  This was nothing like a "booger" that I have ever seen and they were somewhat hard to remove and way too consistent to be nothing.

 

2) Again, in Heavy periods, my "Phlegm" would become rather "glow in the dark-like" pink and "frothy" and within it was golden "shrimp like" things that were not present normally.  I even varied my diet and modified behaviors to see if it could be something I was doing or eating.  It did not change until the "peak" would end. These did not appear to have any movement per se' associated with them although if placed in water they seemed to fall and then rise over and over (weird). Heavy periods lasted approx. 7-10 days and then stop for two-weeks and then erupt again.

 

3) I would often spit the black "Pellets" which seemed to erupt from a sore the would not heal on my upper lip. This lasted over a year and would occur every 2 weeks for 1 full week.

 

I could go on and all I can say is PLEASE somebody figure out what the hell this is and how to completely get rid of it.  Also, if anyone can find a way to make the scaring go away faster I would appreciate knowing.

 

The major problems have lessoned and I still occasionally have flair ups. Though never as bad as the first year and a half.

 

I have become more used to it (well, as used to it as I can be) and I try to resist the temptation to pick at the eruptions but MAN am I glad there are others who are seeking out what this is and how to deal with it.  I have lost faith in doctors and think now that they are intellectual idiots for the most part.

 

May God help us all and I hope that I can find out more regarding what to do about this torment... Thank you for at least listening and I hope some of this can be at least better explained and possibly cured.

 

Thank You.

James B. K.

 

Here is a photo of one of the sores that lasted for some time on the back of my hand (and this was a small one... but lasted well over 2 months and is still a raised scar:

 

 

6/24/6

Thank you for your inquiry regarding the condition some refer to as “Morgellons.” CDC is presently bringing together medical experts from several scientific specialties in a working group to help us understand this pattern of illness or syndrome. Our aim is to gather information on people reporting this condition to see if they share common traits, experiences, or anything that might have put them at risk for these symptoms. We hope to learn enough about the condition so we can offer useful advice for control or treatment, something that is not possible now because too little is known. Since CDC has no clinical center or hospital to evaluate or treat patients, we urge persons who believe they are suffering from this condition or who have distressing symptoms to seek evaluation and medical care from their local health care providers.

 

---

From: fair lady [mailto:fair_lady95@yahoo.com]
Sent: Friday, June 23, 2006 9:11 AM
To: Morgellons@OKstate.edu
Cc: Morgellons Syndrome (CDC); earthfiles@earthfiles.com; lisa@coasttocoastam.com; jr@rense.com
Subject: Morgellons is not a mystery,it is a reality

 

Dear Dr Wymore,

I am an Iranian physician,but I have never seen a Morgellons case so far.I have read about these people.I intend to introduce fiber samples very similar to the samples from Morgellons lesions.Mike Moore has found a meteorite in 1971 in Texas,he has worked on the rock origin for several years ,he has found fibers very similar to Morgellons lesion fibers from the creatures of the rock.

http://www.rense.com/general39/chem.htm

http://www.marslife.com/glassies.htm

http://www.marslife.com/reflections.htm

Dont you think it costs to review his findings for a while?

I have never known a delusional disease which brings fibers on the skin.

But I know an old medical trick,when we cant understand our patients' problem,the most of physicains say that it is a psychic symptom.

Regards

Fair lady

hey  uhh...  you.     i too have seen the same "bug"  or watever under
a
microscope at 300x focus.  after suffering itching and crawly feelings
for
months  me and my family  couldn't get answers from anyone  so i bought
a
cheep microscope  did sum hunting and found the same! creature on us.   
if
u want more info or have any news  my e-mail is xxx my 
name
is David. G.L.  god bless

6/14/6

Dear Ms. Stebbins:

            You have been correctly informed that CDC is organizing a working group to investigate what some are calling “Morgellons Disease.”  This effort will, we hope, lead to a clearer understanding of what accounts for the symptoms and the best approaches to relieve distress.  Since we are just getting underway it is too early to consider how individuals may be asked to join the inquiry. CDC’s activities will be structured in accordance with strict scientific discipline in the interest of answering the questions raised above.  Thank you for your patience during this time and for your kind offer of assistance. 

            Sincerely,

6/13/6

Thank you for your reply.  It means alot that you are willing to help.

Forgive my newness to all this ---

Are you in Florida?  Do you have Morgellons; if so, how long?

I want to try and create a Florida support group and then be able
to find out how widespread this is taking place here.

Thanks for any info. 

I have currently switched careers and I am looking for a job.  So,
therefore, I have
some free time here and there (which I am currently using this time to
help
my friend).

My friend would be online if she could, but she is so fatigued at
times, with the brain
fog, and blurry eye symptoms.

If you need some help, let me know.

Belinda
 

Thanks,
Not as worried about publication as l am getting to the masses. Any
cloth, including hemp and burlap and other materials plus government
conspiracies and more are all possible as l was with the Adjutant
General in the Army and know they tested towns by what they put into
the
water supply. We are a nation who allows our leaders to be liars
because
we allow the money to get in our way instead of having the masses get
rid of the SOB's who are intentionally allowing this and HIV and other
problems to continue. Look at cancer patients with a month to live and
they still shove CHEMO down them at a high price instead of giving them
good drugs to mellow out and have a quality of life instead of
quantity.
l feel they are forcing many VETS to go fo quantity as a test for
Morgellons and other diseases.
BUT, l'm delusional according to many doctors who will say the same
thing and when they tried to put down STRESS, l told them l would have
them jailed for changing medical records.
People need to have doctors write up all problems, mental included, so
there will be massive lawsuits of malpractice for both military and
civilians who are allowing us to hurt and be "crazy" but mostly anxious
and depressed, at least for me, BUT, now l can pin it on Morgellons
even
if it is something else. Not my fault if ALL my symptoms match
Morgellons as l did not write a thing but medical records can prove the
last 40 years.
best and hope you need me to help in some form as l am afraid, KNOW my
fate if this spreads to eyes etc, and debating about our insides as
l've
had several people whose gums went for NO reason and they believe
Morgellons as l do because l'm going thru something similar and my
mother, age 86, still has her own teeth as did l0 generations before.


Tacoma, Washington
 

From: Mike Moore

To: jclemens@midsouth.rr.com

Sent: Thursday, June 08, 2006 7:20 PM

Subject: Re: Morgellon's hell

 

Dear Janet,

I'm sorry it has taken me so long to reply, but my internet has been turned off due to lack of payment.  Things are better, so please send me your story and solutions.  I'll post them without your name.

your friend,

micromike
 

After many years l found out about Morgellons last year at a time had l
not learned l would not be writing this.
l have found water spreads this and as a former daily shower taker l
found it hard to go to Ammonium Lactate for 2x's daily bath and than
ointments.
l've had all the symptoms and am forcing the Veterans Doctors to start
paying attention as malpractice can go into military doctors as well as
Civilian.
l am still afraid as my thoughts are constant but l won't carry them
out
as l believe the government owes much of us, veterans or not, for not
telling us about this and forcing the Center for Disease Control for
doctors to help. This has been around since l560 when it was called
Elliott's Disease.
Looking for info to pass to VA to force their hand plus it will make a
difference on my receiving low paying Pension or full benefits which
means l could see a dentist or live someplace.
best,
 

5/30/6

This is my family story of MORGELLONS.....

I really don't know where to start.....My husband and I have suffered 
from Morgellons for 10 years now.  We were infected while living in South 
Texas near Freeport.  My husband worked for a chemical plant that was 
introducing man made organisms under strict controls into their waste water 
treatment plant one barrel of this man made organism was worth $10,000 so many
organisms on one pin head, in fact my husband found it interesting at 
that point in our lives.....

My first symptoms of this disease was sore on my arm that I could feel 
being attacked......took forever and ever to heal.....off to the 
dermatologist with my issues and told "NO PARASITES are biting you and to quit
picking.........gave me some sort of prescription antibiotic and sent 
me on my way......didn't even do anything more than a visual to make his
determination......

Well things went pretty good for a while after that first incidence 
several other skin lesions again taking forever and ever to heal.....I have had 
sore on my body every day of my live since this started.....and one bug bite 
(say mosquito anything sets my system into overload.  I was healthy before 
all this 28 years of nothing but health....all of a sudden I am
delusional.....just like the other families, athletes, nurses, and
administrative assistants are all delusional.....RIGHT.....

so here we are 5 years later and my husband is diagnosed with RA even 
though NOT ONE person in his family history has had RA and at 39 years old 
stricken with RA which I now believe is MORGELLONS/RA.  He has been one of those
patients that has baffled the RA specialists due to his non response to
treatments even qualified for PROSORBA treatments under the care of one 
of the world renounced RA Specialists/Researcher he had 24 treatments of 
blood dialysis this works at 1 sessions every week for 12 weeks and he did 
that twice, this did of all the treatments give him the most relief but this 
is a very expensive treatment so needless to say came to an end by the 
insurance company. In fact his group health plan at his work was 
cancelled.....HUMMMM

This is such a long story to put down in a email.....I didn't even know 
I had MORGELLON because not ONE dermatologist or any doctor for that 
matter gave me a name for this disease until I read about others suffering 
from the media hype......I thought I was the only one suffering from this......I 
see other people with beautiful skin and mine has been through the wringer 
now for 10 years.....I have spots all over my face, arms, neck and legs 
from this disease.

It seems REALLY ODD that whole families are getting this......sounds a
little contagious to me......I believe my husband and I both have 
MORGELLONS and we have been contagious for 10 years maybe at certain times or all 
the time.....don't know......but I think we are contagious.......just by 
what I have experienced and the more I now read about this disease WHY?? are 
whole families stricken all at once with this terrible affliction......

Here are other symptoms that mimic MORGELLONS.....

IMMUNE system compromised
RA jiont pain
NEURAGIA
FIBROMYALGIA
LYMES which is one they really try to associate this disease with -- I 
don't believe it!!!
you name syptoms we experience it, this disease never seems to amaze me 
like cramping in the shin muscle and muscle twitching, skin crawling, 
painful lesions, flucuating body temperature at least 10-15 times a day and 
more so when trying to rest,  the list goes on and on 

You see this disease needs a whole new field of doctors ones that 
specialize in macro biology and man made organisms to find the truth to this
disease.....

I have experienced symptoms besides my husbands RA

sores that take over a year to heal
lesions on my head that burn with pain for several days then gone like 
they never existed but the pain is still there
sore joints.....hands, wrists, fingers
easily tired.....uncontrollable fluctuations in body
temperature.....temperature shoots off the charts radiating from head 
and skin sweating but cool in mouth
sand like matter in my eyes and eyesight problems
at times easily stressed.....NO WONDER

we have been through it all as far as therapies being that all 
MORGELLONS patients are left to treat themselves because the medical profession 
has wrote us off as delusional......BS.......we have to help 
ourselves.....there are no specialists yet for this disease......they need a whole 
new set of medical experts to work on this one....as the nation continues to
sicken.....

I am a firm believer in natural therapies and over 10 years have tried 
them all in fact I even took correspondence courses from a College in Oregon 
so I could understand natural therapies.......sorry but to be truthful 
didn't help us one bit......I still believe in natural therapies but not for 
this macro bug......antibiotics help with secondary infections but certainly
doesn't resolve MORGELLONS disease.....my husband is of course on RA
medications, prednisone and methlytrexate plus all the other RA drugs 
that were thrown at him during his initial diagnosis.......MORGELLONS has 
caused his RA his body has recognized this foreign invader macro bug and is 
trying to eliminate it and put his immune system into overdrive......that is 
why he was such a hard case to figure out this is a man made organism that 
could go undetected much longer if the medical profession continues to ignore 
this disease....

I am tired of suffering and tired of lack of help from the medical 
communty and tired of this delusional theory WE are NOT ALL DELUSIONAL  So 
reaslly how many MORGELLONS patients have been misdiagnosed due to medical
profession under qualified in making our disease DELUSIONAL

Thank you for your desire to understand this disease just a little bit 
more

Feel free to contact us if you would like any further information of 
what we have experienced over the last 10 years.....I think we are CONTAGIOUS 
now that we know what is happening here.......the TRUTH is SCARY

Now read the next story and see what Morgellons patients are facing!

5/29/6
 

Hi Micro Mike,

I have been suffering with Morgellons for about 3 years now.   As for being considered delusional, I think it is worse in Australia than currently in the USA.

I just read a point discussing whether Morgellons was related to acidity.  Funnily enough I have just been told that I have the most acidic body that has been seen by my naturopath.  Another point of interest is that I have a candida infection in my blood, with Candida supposedly being present in the gut and colon only, of healthy people anyway.

This has caused my blood cells to be so deformed that they block the capillaries, causing me to slowly starve.

Respiratory tract infection makes alot of sense to me.  I was kept in hospital for a couple of days because they could not figure out why I had so little oxygen in my blood.   I was released with no answers.

Also, when I first became sick, my Mum thought I had a goiter as I had this lump in my neck.  This area seems to be a continuous source of fibres and the like.

Do you know what insects people have reported seeing?   Although I don't see insects on my skin, there has been many times where I have scratched myself and it seems that a flying insect (both fly and moth like) has appeared.  I don't know whether this is just a paranoia or whether it is actually possible.

cheers,
Amy
Perth, Western Australia

PS. there are many people suffering in silence.  I see the evidence in public bathrooms everywhere.

Link to Rense.com Morgellons Page

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